Many of us misunderstand what ?long-term care? means. Some people feel that it is the end of a person?s rights and the end of life. There are many definitions of long-term care. The one that works the best is the definition from our own country?s regulations:
Nursing home residents have rights and certain protections under the law. The nursing home must list and give all new residents a copy of these rights.
Resident rights include:
- Respect: You have the right to be treated with dignity and respect.
- Medical Care: You have the right to be informed about your medical condition, medications, and to see you own doctor. You also have the right to refuse medications and treatments, or choose services.
What about if I am at the end of life?? What if I choose hospice care? What if I want to live in my nursing home?? Most people can choose to stay in their nursing home and choose hospice care.
What is hospice care??Hospice offers care to help individuals with progressive illnesses live each day to the fullest. Hospice can assist people with physical, spiritual, emotional, and social needs. The focus of hospice care is to maintain the dignity and comfort of patients while offering support to the family. Hospice does not speed up or slow down the dying process. Hospice views death as a normal occurrence in the continuum of life and gives support and expertise during the natural dying process.
Choosing hospice care is not giving up.? Hospice does have different goals than other health care providers: palliative care rather than curative care. It is a decision to maximize quality of life by managing symptoms and controlling pain. If the patient?s condition improves, or the patient decides to seek curative treatment, he or she can leave the program. If the patient needs hospice services again, they can re-enroll.
Sounds like quality of life?? Sounds like what we all want. Many homes work hand in hand with hospice to provide the best care for their residents. Read on for answers to some basic questions about long-term care residents and hospice.
Who controls a patient?s care?
The patient is the care team leader. Hospice and nursing homes ask ?What are your goals?? An individualized care plan is developed that meets the needs and goals of the patient. The team works together to help meet those goals. The patient, along with the family, is always in charge of treatment decisions.
What is meant by ?inter-disciplinary approach??
Hospice and the nursing home recognize that emotional and spiritual pain exists in addition to physical pain. A cohesive team supports patients and families with skilled nursing, social services, nursing aides, spiritual support, volunteer services, and bereavement support.
Hospice cares for patients wherever they are: assisted living centers, independent living centers and nursing homes. Hospice care does not replace long-term care; rather, it supplements the care. If you would like to know more about hospice and long-term care, join us at a regional training or review some of the latest research.
AIPP Training: Hospice in Long Term Care http://www.afmc.org/HTML/professional/events/calendar.aspx
Take a look at some of the latest research on long-term care and hospice at the link below.? http://www.nhpco.org/i4a/pages/index.cfm?pageID=6512%20receive%20hospice%20care. ?From the article: ?Family members of hospice recipients were 51 percent less likely to report unmet needs and concerns with quality of care.?
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